Holiday Happiness and Angels

I can't believe that I didn't post on Christmas!  I guess everything just got busy and it went by the wayside.  The holidays have been great for our family.  We were able to spend great time with the girls, with my family and even with friends.  I finished all of my shopping and wrapping early so I even had some stress-free days when everyone else was running around like crazy people.

As always, I am grateful and happy to have good health for me and my family, but have been saddened by several events over the last couple of weeks.

First, I was upset to hear that a friend and former colleague has been diagnosed with breast and lung cancer.  Her family support position is not ideal and even though I know she is as tough as they come, I can't help but worry that she will at times feel alone in her journey.  I think about her every day, knowing that she has good medical care and lots of friends who care about her and hoping she will find the strength wherever she can. 

My sister gave birth to her first daughter on December 22nd of 2003.  She was born prematurely and lived only a few short hours making it into December 23rd by just a hair.  I was with her when she was born and stayed until her last breath.  Every December 22nd there are tears remembering her sweet little face and the injustice of her death.

This year my cousin Jeff went through something similar, losing their beautiful baby girl just days before she was due to be born.  On December 23rd, I received a package in the mail with a lovely photo tribute to their sweet baby girl.  Again, the injustice of a life not lived brings me to tears and the wrenching words of the grieving parents nearly caused a complete breakdown on my part.

My Great Uncle came to our holiday open house this year.  His first Christmas since my Great Aunt Mae passed away.  They were together for some 60+ years.  Though I was very happy to see my Uncle, seeing him tear up throughout the evening was heartwrenching.  Though she lived a long and happy life, it was not for her that I was sad this year, it was for those she left behind.

My holidays were happy, but with that happiness comes a bit of melancholy as well.

Holiday Cheer or no Cheer

It is the holiday season with families gathering all over the world to share food, drink, love and more. I love this time of year and love the cheer that goes along with it. However, since my diagnosis, I have been more cautious about the cheer that I partake in.

I gave up sugar and sugar substitutes and all forms of corn syrup immediately after I was diagnosed and have stuck with that. This makes some of the holiday gatherings more challenging, but doesn't really bother me to not partake in the cookies, candy and pies. (OK, in full disclosure, I do drool over the Starbucks counter looking at the Cranberry Bliss bars which are only available this time of year and I definitely take a second glance at my mother-in-law's homemade almond roca!)

I have never been much of a drinker, only drinking in social situations, but I have dropped that considerably since my diagnosis as well and probably have 1 drink a week. Now don't get me wrong, I enjoy a margarita or a good glass of wine just as much as anyone else, it just isn't worth the increased risk of a recurrence for me.

Now there is a new study out connecting alcohol consumption with breast cancer recurrences. Studies are only studies and I know scientists can read whatever they would like into them, but this one says that with women who have already been diagnosed with breast cancer that drinking can increase their chances of a recurrence significantly. Since I have been doing everything I can to decrease my chances of a recurrence, I think I will be finding more joy in family and friends and maybe a little less in a glass.

Sugarplums

The children were nestled all snug in their beds... Oh wait, wrong holiday! Well the children actually are all snug in their beds and the house is quiet. Tomorrow all the craziness of the holidays will begin in earnest and there will be family and food and festivities.

But I will take these few quiet moments to be thankful. I will be thankful for my wonderful husband, my fabulous family and friends and the little sugarplums who are asleep upstairs. But more than anything else, I am thankful to be here, healthy and happy and cancer-free.

Happy Thanksgiving to all.

Happy Easter

Today our Easter was rather quiet. My parents are out of town (we missed you!) and we had brunch with my sister and her kids. We made a fabulous stuffed french toast and all of the girls were near explosion level with strawberries and whipped cream.

I am thankful for simple things today. The laughter of my kids as they searched for eggs, the whipped cream smiles of my daughters and my nieces, the smell of sausage and syrup, the ability to smile and be happy knowing that my whole family is healthy and happy, my husband cooking on the griddle (he is the king of breakfasts in our house) and just a little champagne to celebrate.

Happy Easter!

Reflections on 2008

New Year's Eve 2008. We are going to Portland to spend time with friends and to celebrate the New Year, and what a year it has been. There is definitely part of me that says "Good Riddance" to 2008 but really, I feel like before I look forward to 2009, I have to pay my respects to a truly life changing year. It brought many things-some good and some not so good.

Loss: We lost Larry's son to a blood clot and our friend Marty to cancer. We lost our carefree life. Turmoil: Larry and I were both laid off from our jobs at different times. My layoff was a notification and I will be employed at WaMu until the end of March. In the face of everything else that happened this year, not being sure of our financial security threw our lives into more turmoil. Devastation: Not only was I given the devastating news that I had been diagnosed with cancer but so were many friends: Michael, Marty, Ankie and Shana. Pain: Larry and I both had surgeries this year but ours was not isolated to physical pain. The mental pain of being diagnosed with a potentially deadly disease is significant. It is immense-this possibility of dying and leaving my children and family. It is immense for everyone who loves me as well. No matter how hard we all try to stay positive, the fact remains that people die from cancer and I do not want to be one of them. Fear: The fear of the unknown when being diagnosed is almost tangible. The fear that there was more cancer than we were aware of, fear that it would win, fear that the treatments would be unbearable. I could end my reflections of 2008 there and say that it was an extremely miserable year, but it wouldn't be a very true reflection. It was miserable at times....really miserable, but that wasn't all of it.

Joy: In direct opposition to the devastation came the joy of finding out that my cancer was contained in one breast. We also found joy in everyday things; time with friends, good food, special events, sunshine and lots of laughter. Gratitude: I'm an independent person. I don't often need help from other people but I can't say how grateful I am for the amazing support of family and friends. I will never understand how people can battle cancer on their own. There is simply no possible way I could have done it without the great people in my life. Strength: I have many people tell me that I am brave and courageous but I don't see it that way. It's not like I had a choice in the matter; I couldn't just roll over and die, I had to get up and fight. What I do see is that I have more strength than I thought. Not only do I have strength, but so do my husband and my children. They are really the brave and courageous ones. They did have a choice and they chose to get in the ring with me and thank God they did! Pride: I have been proud of my children since the day they were born, but I am so proud of my family and how they have handled this. They have handled it with grace, compassion, determination, humor and love. Isn't this what we want from our children and spouses? To know that they can handle the hard things as well as they can handle the easy things? Happiness: Does it seem odd to say that in the year that I have been diagnosed with breast cancer that I would find myself to be happy? I am. I am very happy with my life and have found a certain confidence in myself that I didn't have before. I have found a joy in expressing myself through writing-something I didn't know that I needed. Clarity: My priorities are defined in a much different way since my diagnosis. Friendships are important, family is important, my job is important and my health is important. My health! I have ignored it for many years and been lucky. Now I get to pay attention to it and be grateful to do so.

2008 was a terrible year in many ways and I wouldn't have wished it upon myself or my family. But now that it is done, I recognize it for what it was...life changing. It brought as many good things as it did bad things and I am grateful for the opportunity to recognize and appreciate both. I will not go so far as to say that I am grateful to have cancer. I'm not-I still hate it. But I am grateful for those positive things that it has brought into my life and those things that I have had the opportunity to view in a different light. I am grateful to have made it through so that I can lay 2008 to rest with the dignity that it deserves.

Gathering of Family

Last night we hosted the rescheduled Holiday Open House that we have been hosting for several years. This group of people is a collection of family. Not everyone is related to each other, but they are all related to me in some way.

I am happy to say that despite more snow falling, everyone braved the roads to join us. I think everyone suffered from a bit of cabin fever over the past couple of weeks so there was lively conversation all around and as usual, plenty of food and wine.

For many of us, this is the only time that we get to see each other so there is much to catch up on. Everyone has had an eventful year and I think we are thankful to be able to connect with each other. I know there were some who were worried that I was taking this on and I hope that when they saw me, they were reassured that I am doing fine. Besides a lingering cold, VERY short hair and some odd, chemo related fingernail issues, I am doing well. I never considered not hosting what has become an annual event.

My girls received a Wii from Santa and have spent almost all of their time since then playing it. When the cousins came over, they joined them in playing the Wii games so we didn't see much of the kids. We were able to capture this picture of 7 cousins when we convinced them to sit down for a brief moment. My two daughters, my sister's three daughters and my cousin's two sons. I am thrilled that the kids enjoy each other's company as much as the adults enjoy theirs. Here's to family.

The Stockings are Hung

It is Christmas Eve and everything is ready. The stockings are hung, the Christmas trees are done, the presents are wrapped. We have told the girls that they cannot get out of bed before 7:00am. We'll see how that works.

I have had a difficult time figuring out what to give to Larry for Christmas. It was no problem for me to find gifts for the girls, but have chosen and discarded several ideas for my husband. In part, it is because he is difficult to buy for. If he wants something, he buys it. He doesn't wait for birthdays or holidays. Mostly though, I can't possibly come up with anything that feels adequate. What do you buy someone who stands by you while battle cancer; a tie? A coffee mug? A flat screen?

As with other marriages, ours has had its ups and downs. It has not been a perfect marriage and has taken work. If you would have asked me 16 years ago when I met him if he would have been the best person standing by me should I ever have to go through a battle as serious as cancer, I'm not sure what I would have said.

But he was the best person. He didn't come in like a knight in shining armour and take over. He didn't talk to my doctors or try to make decisions for me. He didn't treat me like I wasn't able to make my own decisions. What he did was allow me to be strong and make my own decisions and he stood by each and every one. On those days that I ran out of strength (and they were many) he gave me his. He remained rock solid for the girls and for me. He did not waiver in his determination to keep our life as normal as possible. What he did was allow me to fight cancer in my own way but stood behind me the entire time in case I should falter.

He has told me many times that he wishes he could take the cancer for me and be the person who was sick. While I know this comes from a place of love, I wouldn't give it to him. I could never be the watcher. I am a terrible back seat driver and am too much of a control freak to not be in charge. I could not do what he has done. I think it takes more courage and strength to be the person who has to stand by someone than it is to be the person who takes the action.

What I have learned is that I love my husband without a doubt-and he loves me the same way. We are the right people for each other. He is someone that I am grateful to have in my life. I am proud of him and I am proud of us. We are a very powerful team. We are raising amazing children and in the face of something pretty devastating, we know how to stand by each other.

So does Larry have presents under the tree? Of course he does. But none of them will ever be adequate enough to thank him for what he has done for me this year. None of them will be good enough to explain to him how very much I love him and how glad I am that I married him.

May your Christmas bring you the kind of love that I have and may you feel blessed in whatever gifts come your way. I know what my gifts are and they don't come in a box.

The Best Laid Plans

Each year, we host a Holiday Open House for my family on the Sunday before Christmas. We have done it every year for several years, despite busy schedules, new babies and wind storms. This year I was determined to not let cancer put a halt to this tradition. Our open house was scheduled for today and we were ready to have everyone over. The house is clean, the lights are up on the house, the tree is up, the menu is planned. We were ready.

If I have learned anything this year since being diagnosed, you would think it would be that not everything goes the way I plan. I certainly didn't plan to spend the majority of 2008 fighting cancer and despite the fact that our Open House is always planned for December I didn't plan for snow. Mother Nature had different plans than I did and has blanketed the entire Northwest and brought all of us to a screeching halt.

I am disappointed that we had to cancel but feel good that everyone is safe and warm at home and not navigating icy streets. Once we made the decision to cancel, my day opened up suddenly in a way that I had not anticipated. We had NOTHING that we had to do! We were given a gift that I would not have expected-time. Today the girls played in the snow and sledded down a giant hill. I got to spend a leisurely afternoon wrapping presents. This is usually a chore that I squeeze into stolen moments late at night when I am tired and would rather be in bed. I don't usually get to enjoy the labor of love that it should be. Larry watched the entire Seahawks game in peace. I cooked dinner with my daughter and we ate it while watching a Christmas movie.

Once again I have learned that sometimes good things come from what I didn't have planned. Now don't get me wrong...we will reschedule the Open House for the day after Christmas. I'm flexible enough to take advantage of a change of plans but I'm also persistent and determined. Cancer may have brought some good things into my life, but it isn't going to stop me from keeping my original plan of having a long, healthy, happy life.

Traditions

Every family has their traditions and when you have children, you either pass them on or create your own. We have done both. When I was growing up, my dad painted a holiday scene on our windows each Christmas season. I remember watching him do it and waiting patiently for the finished product. Though he was a much more talented artist than I am, I have carried on this tradition in my own way. It is something he passed down to me and I am now passing it on to my girls. They are excited every year when they see the paint come out and know that our windows signify the beginning of the holiday season for us.

For the last several years we have hosted a holiday open house for my extended family the week before Christmas. We started this tradition out of necessity. It was becoming impossible for everyone to get together once they had their own families, step-families and in-laws. It has since become something that Larry and I look forward to and the girls look forward to. They start asking about the date of the Open House right after Halloween. Traditions are important to them and even things that we didn't know were traditions, they have decided are.

Tomorrow I go to see the Hereditary Genetics Counselor at Swedish. I will be tested for the BRCA1 and the BRCA2 gene-the only two genes known to predict a higher risk for breast cancer and I will ask that Larry be tested as well. I don't have other people with breast cancer in my family, but I do have other types of cancer that may or may not be related. Larry has breast cancer in his family as well as other types of cancer. Though I will be very surprised if I do carry the gene, I want to know one way or another where both of us stand. I'd like to make sure that I am passing on an appreciation for painted windows and not an increased risk.

Songs of Joy

Darci is in the choir at her elementary school and today they sang holiday songs for the senior citizens at our local community center. I spent most of the time watching the audience for their reaction to 125 kids singing for them. I have to applaud Debbie Folkerts the music teacher for her selections. I could see that all of the seniors were touched in some way by one or more of the songs.

They sang a fun reindeer song first to get the crowd going. Then a Hannukah song with Hava Nagila. I love the way the words in this song just slide over the notes. I saw several people singing along with this one and was so proud of the kids that they were able to represent beliefs that may or may not be their own. They also sang a Kwaanza song celebrating this African American holiday.

They sang a swinging holiday song that had many toes tapping. They finished with a couple of classics, Jingle Bells and Rudolph the Red Nosed Reindeer. When they finished, all 125 of them went out into the audience to wish the seniors Happy Holidays. It was a joy to watch their reactions as they were completely engulfed in a sea of kids.

I had to think that this is what it is all about. These people have undoubtedly had ups and downs in their lives. I'm sure they have grieved and suffered and had joy and celebrations. In the end, it is the experiences that bring us joy that we remember. What I saw on each of their faces was joy and wonder-125 kids strong.