Tuesday, November 10, 2009

Aging Gracefully?



I had the chance to go on a field trip for my niece today with my sister and the babies. I haven't been on a pre-school field trip for a long time so it was very fun to be around a bunch of excited 4 year olds. As we were walking out, my niece's teacher says to another little girl-"Go ahead and follow Ellie's grandma" meaning me. Ummm.....Grandma?? Ouch.

When you are told that you are going to have to have chemo and lose your hair, there is a certain amount of vanity that you have to let go of and deal with the fact that you are not going to look the same as you did before. But here's the thing...I wasn't thrilled to lose my hair at all, but once I did, I was actually pretty happy with my head and how I looked. I felt like all through chemo, besides looking a bit pale, I was looking OK.

Now that my hair is growing back and I am healthy, I have been under the illusion that I was looking pretty good. I am 44, I have decent skin with not very much wrinkling, dark brown hair-no gray, I am relatively fit. I don't wear mom jeans, I try to stay up on fashion. I mean really....grandma?? Not that there aren't 44 year old grandmas, there are, but hopefully none of them have children that are my sister's age.

My sister is 39 years old which means if this woman truly thought I was her mother, then she thought I was at least 59, 60? My own mother is a very young looking 65 and my grandmother is a very young looking 85. While they are both lovely and young looking, I'm not entirely sure I want to be thought of as the same age. And while my sister is beautiful and wonderful, I can't in all honesty say I would mistake her for someone who is 23 or 24 with a 44 year old mother.

Have I just been so happy to be healthy that I didn't realize that I look much older than I am? Did I really go from looking 43 before diagnosis to looking 59 after?? What a blow to the ego that is. Now what? I guess I need to start taking a hard look at how I appear to other people and what I am doing to stay healthy. Or maybe I just say this woman is not especially observant and clearly spends too much time around 3 and 4 year olds. Maybe I just shoot daggers at her until she realizes that not only am I only 44 years old, I am still young enough to take her out in the parking lot and teach her a lesson!

Wednesday, October 28, 2009

Broken Hearted


My cousin Jeff and his lovely wife Rachel lost their beautiful baby girl this week before they even had a chance to know her. It absolutely breaks my heart.

Rest in peace sweet girl.

Wednesday, October 21, 2009

25 Things about Me


This "25 things about me" list has been around for awhile, but it is still fun to do. Here are my 25 random things.


1) Though I will listen to almost any music, I HATE country music. When I hear that twang, it makes my skin crawl.

2) I have never found a cheese I don't like and if I thought my digestive tract and my waistline would put up with it, I would become the world's first cheesatarian.

3) When I was 15 years old, I was "banned" from my best friend Shannon, for being a bad influence on her. I think there may have been some confusion about who was leading who down the wrong path. Almost 30 years later she is still my best friend.

4) I met my husband while working in Portland and after a series of conversations found out that he was likely a counselor at a camp I attended when I was in 5th grade---eeewww!

5) In 2000, I traveled to China with my grandmother and had the chance to see the Terra Cotta Soldiers in Xian. It remains one of the most amazing things I have ever had the privilege to see.

6) I have one of the longest college careers in history. I started college right out of high school, but due to jobs that required travel and a lack of funds, it ended up taking me 20 years to finish my undergraduate degree and another 3 to finish my graduate degree. 23 years of college has got to be some kind of record.

7) For my last class in my last quarter of graduate school I went to Italy for 3 weeks. My final grade depended in part on working with a restaurant to develop, eat and share a 6 course Italian dinner. Tough job-but someone had to do it!

8) I am distantly related to Ripley of Ripley's Believe it Or Not

9) I share a birthday with Albert Einstein. I like to think that I take after him in brains and not hair style.

10) I have only one good party trick. All of my fingers are double jointed and I can bend my fingers backward at a 90 degree angle to my hand. I never knew this was abnormal until I was an adult.

11) When I was pregnant with my first child, my husband wanted to find out the sex of the baby. I told him that he could find out if he liked, but I knew without a shadow of a doubt that I would never produce anything but girls. I have two daughters.

12) I also knew without a shadow of a doubt that my sister would only ever produce boys. She has 3 girls. Something went amiss with this theory.

13) I will eat popcorn as a meal at least once a week.

14) I love reality TV. I like anything that shows people chasing and reaching their dreams.

15) In her 20's, my sister jumped out of a plane. It made me wonder if we were really from the same gene pool. There is NOTHING that would make me jump out of a perfectly good plane, unless it was on fire.

16) One of the first songs that my children learned from me was the Oscar Meyer B-O-L-O-G-N-A song.

17) My first car was a green Vega. I plan to print out a picture of it and show it to my children when they start asking for their first car.

18) Both my mother and my sister have a green thumb. Mine is decidely black.

19) I worked for Nordstrom for 16 years and STILL miss my employee discount.

20) I am a Pisces-a sign that is supposed to be creative. I can barely draw a straight line.

21) I once cut my foot on coral while snorkeling in Hawaii and was convinced that I was going to be eaten by a shark while bleeding in the water.

22) I should have been born during the depression-I love a full pantry and freezer. I could feed 20 people at a moment's notice any day of the week.

23) My children are the greatest gift I have ever received.

24) Every animal I have ever had has had a people name, not an animal name...until my husband adopted and named a stray cat-her name is Zingo. My other animals? Lola and Mimi.

25) Last year I was diagnosed with cancer. At the time I was diagnosed, the 25 things about me would have all had to do with cancer. This year I am a survivor and out of 25 things, only one has to do with cancer-and it gets bottom billing.

Tuesday, October 20, 2009

Dropping in for a visit

When I was first diagnosed, I searched and searched for information. Beyond medical information, I really wanted to know what to expect, what it was like to have cancer. I started looking for breast cancer blogs and found that there are thousands of them. It is because of one that I found that I decided to start my own. It is a unique way to share information with people near and far.

I originally started my blog with the intention of keeping my friends and family informed. What I didn't expect was that people from all over the world would find my blog and find it helpful and informative.

Kara, aka Foob Babe, is one of those people who found my blog at some time doing her own research. She is a survivor as well and writes her own very informative blog about her own cancer journey.

She has started a separate blog, <Incredible Women
and has decided that in October she would like to feature different people with different viewpoints of breast cancer. I am thrilled and honored that she has asked me to be one of the people that she is featuring. I will be dropping in for a visit tomorrow (October 21, 2009). I hope you will drop in and visit Kara's website as well. Thank you Kara. You are an incredible woman.

Saturday, October 17, 2009

Information Unleashed

In general, I think I do a pretty good job of staying informed about the latest in breast cancer research as well as in my own personal cancer journey. There is information that I have about my own diagnosis such as my prognosis, the survivability rate, etc that I don't particularly like, but I have them.

When I was first diagnosed, I chose to take an Oncotype test that is pretty darn reliable at indicating recurrence rates in breast cancer patients. It is a simple test and in some cases it is used to determine if people are a good candidate for chemotherapy. In my case, my pathology report came back saying that my diagnosis was a Grade 3 out of 3 which is aggressive so my doctor agreed to the test, but indicated that she would be VERY surprised if it came back with a low score.

The test results take several weeks and come by mail. I got my big white envelope in the mail and found that I couldn't open it. Though I knew that my cancer was aggressive and that there was no chance I was going to avoid chemotherapy, I found that I couldn't deal with an actual number saying I had x% chance of recurrence. I know roughly what my chances are of a recurrence, but didn't want to carry a number around in my head.

I gave the envelope to my oncologist, told her I didn't want to know what was in it, but wanted to know if we were on the right path as far as chemo, radiation etc. She said we were definitely on the right path and that the oncotype score did not change our treatment plan at all.

Yesterday I went in for a regular check up with my oncologist and asked her about having my ovaries removed. There are several reasons for this, mostly to keep the estrogen level in my body down, but also to decrease my chances of developing ovarian cancer. We talked about the pros and cons of having it done and I asked her if I should be doing it earlier than later. She answered that there was no need for me to do it right now, although with such a high oncotype score I should plan to do it at some point. Wait. Stop. "High Oncotype score?" I literally felt my head pop out of the sand.

She did not tell me my actual number so I still don't have to carry a number around in my head, but I do now have to carry that "High Oncotype score" in my head and try to figure out what to do with it. I like to tell myself that I am doing everything I can to keep my recurrence rate down, but that isn't entirely true. I am still not getting enough exercise and I am still carrying around some extra weight. These are two of the easiest things a woman can do to reduce her risk and I am still at an increased risk. I also now have to wonder if my treatment was aggressive enough. I had 4 rounds of chemo-the minimum amount that anyone has. While I certainly didn't want to do more, I thought it was enough. Now I don't know if I have done everything I could.

Information is powerful. Sometimes too powerful.

Thursday, October 15, 2009

National Mammography Day


October gets the honor of celebrating Columbus Day and also Halloween. While my kids would argue that Halloween is the most important day of October (and maybe even the year), I would argue against that.

Tomorrow, October 16th is National Mammography day. Who knew? I certainly didn't. I obviously know the importance of mammograms but didn't have any idea that there was a day dedicated to a test. I did a bit of poking around and found out that President Clinton first proclaimed the third Friday in October of every year as National Mammography Day back in 1993.

So when should you have a mammogram? The standard answer is once every 12 months once you turn 40. However, if you have any breast cancer history in your family you should start getting annual mammograms when you are 10 years younger than your youngest relative at the time of diagnosis. I was diagnosed at 43, my daughters will need to start getting mammograms at 33 years old.

I think to say once a year is confusing. Once a year doesn't mean you can have a mammogram in January of 2008 and then December of 2009. It means every 12 months. I had just had one in December 2007 just 5 months before my diagnosis. While there was nothing found in that mammogram, all of my doctors looked back at all of my mammogram films to see if there was anything that was missed.

I had mine in September of 2009. I have another one scheduled in March of 2010 because I need to get them every 6 months.

Have you scheduled yours? If so, congratulations. If not, walk away from the computer, pick up the phone and do it now. I'll wait.

Did you do it? Good. Early detection saves lives. Don't forget it.

Wednesday, October 7, 2009

1st Order of Business


OK, I admit it, I am a little behind on filtering through the junk piles at home. With two kids, it just seems like the junk piles tend to multiply. Could they possibly bring home more paper and projects from school??

I hate to admit it, but just today I went through a pile of papers that came home with Darci in June on the last day of school. Most of it will be heaped into the recycle bin, but some things are special. Apparently at the beginning of the year, the kids were asked to write a letter to their new teacher telling them a little bit about themselves, what they wanted to accomplish during the year, goals etc. This is how the beginning of Darci's looks.

Dear Mr. L.

The first order of business is that my mom has been going through chemo all summer and now will be doing radiation. The next thing you should know is that I play soccer and have practices twice a week and games on Saturday.....


I don't know whether to laugh or cry! I think it definitely reflects that the most important thing going on in her life is what was happening to her mother at the time, but I love that it gets the same attention as the fact that she plays soccer.

I unfortunately know several kids in this general age group who have parents who have been or are currently fighting cancer. I don't know how they are all handling it, but I think there is a certain resiliency to kids that as parents we don't always give them credit for. I know when I was diagnosed, my first thoughts were about how it was going to affect my children, would I die and leave my children, how would my children deal with their mother losing their hair, etc, etc, etc.

As I always say, I am utterly amazed by my children. While I was absolutely consumed by the fact that I had cancer, I am glad to know that my daughter was taking it in stride along with the other stresses in her life. It was just a small blip on her radar. While I know that my girls are at an increased risk for breast cancer and that they will eventually have to deal with that knowledge, I think I am glad to know that maybe this will all just become a distant memory for them.

Kudos also to the teacher who wrote a note back to her that was very sweet. It said that he had gone through something similar with his mother and if she ever needed to talk about anything, he was there for her. I don't know if she took him up on it, but I'm glad that she was in a place both physically and mentally where she felt comfortable and supported.

Monday, October 5, 2009

Damn Boobs



October has been deemed Breast Cancer Awareness month. In a month that used to be all orange and black for Halloween, now everything is pink. Pink at the grocery store, at the gas station, on our soup cans, our kitchen gadgets, I even saw pink on the football uniforms of the Seattle Seahawks yesterday! It is all a little crazy sometimes to see so much pink, even for a breast cancer survivor such as myself. But it is still a good cause and there are lots of ways to help make a difference.

When I did the 3 day walk, I found that one of the walkers on my team had lost a good friend to breast cancer and had started a line of clothing in her honor. You can read Trisha's story about how the company and the company name came to be here The entire team honored her memory by wearing one of these shirts for the 2nd day of the walk. They definitely get a lot of attention and if you want to have a little fun with this pink month, these t-shirts and hats are a good way to do it. Trisha donates a percentage of her proceeds to breast cancer research so the money all goes to a good cause. Go check out Damn Boobs for yourself! I have a DamnBoobs tanktop and I know she has men's shirts as well. If you don't see what you are looking for on her website, drop her an email and ask if she has. I'll bet she can find you exactly what you are looking for so you can be in the Pink!

Friday, October 2, 2009

What Cancer Looks Like



I spent this last weekend in Las Vegas with an amazing group of breast cancer survivors. Besides my friend Kristina, I had never met any of these women before. I found them on an online forum for breast cancer survivors; www.breastcancer.org

I didn't know what to expect but was surprised and thrilled to learn that these women were just like me. They have families and children and jobs, and they have cancer. We had so much fun together, laughing and dancing and being together celebrating the fact that we are all survivors.

From these people I learned some new words to describe cancer and its survivors:

Young, strong, hopeful, amazing, courageous, attitude, faith, beautiful, genuine, knowledgable, realistic, incredible.

Take a look at this photo. Breast cancer is not just your mother's disease. I think if you look hard enough, you will find reflections of yourself in the faces of these amazing women. The youngest member of this group is 31 years old, the oldest 50. We all face recurrence concerns, survivability concerns, subsequent health concerns, but each and every one of these women has taken their health care by the horns and is doing everything in their power to keep cancer at bay.

I am thrilled and honored to have been part of this group and look forward to doing it again for years and years to come.

Wednesday, September 23, 2009

Happy Dance



Today I went in for a mammogram. This is the second mammogram that I have had since I finished treatment almost exactly one year ago. It is the first mammogram since I had my reduction and lift in June. I was a little bit nervous that after my most recent surgery there would be too much scar tissue to get an accurate reading. I was also somewhat concerned that it would be uncomfortable as I still have some tenderness where my surgical scars are.

Not only were the images easier to read (less tissue), they were all clean and clear! Nothing even remotely suspicious in my films!!

I was also happy to be told that most of my tissue is fatty tissue (sometimes fat is good) which is easier to read on film and is an indication that my estrogen levels are decreasing (good for me when my diagnosis was estrogen receptor positive-I want as little estrogen in my body as possible).

I have been doing a happy dance all day long! I will go back in 6 months and every 6 months for the next 3 years. I don't like having my breasts squashed down anymore than anyone else, but I would go in every month if I had to just to make sure everything looked clean and clear.

Ahhh, big sigh of relief!

Wednesday, September 16, 2009

Reflections on a Walk



Well I did it. I completed this year's Susan G. Komen 3 Day walk. I have not had any type of shoes on except for flip flops since Sunday and have taken advantage of a quiet house to put my feet up and recuperate.

The organization provides cheering locations so that friends and family can come and cheer the walkers on. On Day 2 my wonderful husband and children waited 4 hours just so they could cheer me on. I started to cry as soon as I saw them running to me. After the initial hugging and hello's, my youngest daughter asked me if I was going to do it again next year. A bit like asking someone who is in labor if they are going to have more children, but here are my thoughts on that question:

Cons of the walk:

-9 long months of fund-raising
-9 long months of training
-3 full days away from my family
-1 very large time commitment
-Sunburned cheeks
-Sore muscles
-Several (and I do mean several) trips to the medical tent
-Loss of one toenail
-Blisters
-Blisters
-Blisters

While the first day was full of emotion and uplifting spirit, by the second day I was seriously wondering who had come up with this cruel and unusual punishment. Several blisters decided to make an appearance and each and every step of the 21.6 miles that were included in the second day were painful. My good humor and positive attitude were diminishing quickly. When I saw a sign that said "No Whining" I had to quit talking because I couldn't think of anything else to say.

Pros of the Walk

-Being part of the opening and closing ceremonies
-Meeting other survivors
-Seeing the amazing dedication of the walkers
-Being part of a truly inspiring team
-Walking with my sister who means the world to me
-Walking with my friend Matt, one of the finest people on the planet
-Being pampered and spoiled by the entire 3 day crew from the people helping us cross streets to the angels disguised as medical volunteers in the medical tents
-Looking out into the crowd during opening and closing ceremonies and seeing the smiles and the tears of my teammates, friends and family
-Seeing the incredible community support in the way of stickers, water, cheers, food (and more food)
-Feeling supported in every way
-Raising over 8200.00 personally
-Raising over 137,000.00 as a team
-Raising over 5.5 million as a community

I had a couple of defining moments throughout the walk that I wasn't expecting.

1. On day 2 when my feet were well past cooperating and it was 86 degrees and I didn't know if I could take another step, a stranger stepped off of the sidelines and asked if he could throw away my garbage-a cup that I was carrying. I teared up because someone who didn't know anything about me was willing to do something as menial as throw my garbage out for me so that I could continue putting one foot in front of another.

2. At the end of day 2 when we had 2 miles left to go, I realized that I just couldn't do it. I thought that I wanted to complete the entire 60 miles without having to take one of the many shuttle vans that were available. I took the van for the last 2 miles and realized that I didn't feel an ounce of guilt about it. There is nothing heroic in torturing myself. I realized that my success was not defined by the ability to walk 60 miles, nor was it defined by doing it in the fastest time possible. It was defined by the fact that I raised money for a cause that is immensely important to me.

3. On day 3 I saw a small pink sign stuck in the grass of someone's yard that gave me the reason why it was all worth it. It said this:

My Grandma thanks you for walking
Stage 4
Still Fighting

So will I do it again? My feet will pipe up with a resounding "NO!" but my head and heart will supercede my feet and say yes. There is still work to be done. People are still being diagnosed with cancer every day. 1 in 8 women. That is just too many. I will sign up for 2010 and do it all again-hopefully without blisters.

Thank you to my Grandma, my cousin Dale, friends Mary Kay, Annie, Jill, Paul, Tara, Robert, Marcia, Terry, Tristi, Shannon, Mike, Bailey, Kylie, Connor, Taryn, Jim, Heidi, Grace (and Coco), my husband and my daughters for coming out to cheer us on. Can I count on you again next year??

Wednesday, September 9, 2009

2 more days


Well it is almost here. The Seattle Susan G. Komen 3 Day Walk is almost here. I looked back at my donations and realized that I registered for this walk in January. I have spent 9 months working to raise money for breast cancer research. 9 months is a long time to spend on something. It is the amount of time it takes to produce a baby! It is also the amount of time that I spent treating my own cancer...surgeries, chemotherapy and radiation.

I have been asked to be a flag-bearer in the opening and closing ceremonies in the Survivor Circle. I have been given the COURAGE flag to carry. It is an incredible honor to be asked to participate and I am thrilled to have the Courage flag. There are many characteristics needed to battle cancer; faith, strength, hope, patience, and courage.

3 days will be difficult, but if it can prevent someone else from spending 9 months or longer fighting cancer, then it will be worth it.

Tuesday, September 1, 2009

Catch a Cure for Cancer


"When cancer is discovered at an early stage, nearly every patient is cured while the opposite is true for cancer detected at a late stage. The Hutch will lead the way in early detection. We have a terrific group of very talented scientists who are international leaders in research on early cancer detection."
- Lee Hartwell, Ph.D., President & Director,
Fred Hutchinson Cancer Research Center.

This morning I went to a local radio station to be interviewed. My story will be part of a radiothon on September 16th that the Moyer Foundation puts on to raise funds for the early detection of cancer.

While I was honored to be asked to do it and to participate, the most poignant part of the interview was having my girls there with me. They were asked to be part of the interview as well and I couldn't have been prouder of their poise and maturity.

When I found out that the interview would take place with all 3 of us in the same room, I was worried. Not worried that the girls couldn't handle themselves, but worried that I couldn't. Though I can speak to my own cancer story without getting overly emotional, it is a completely different story to listen to my children tell it from their perspective. It makes me sad that they had to go through this cancer experience at such a young age and in such close proximity. It also makes me proud that they handled themselves throughout the entire diagnosis, surgeries and treatment with such grace and understanding.

I am blessed to have such wonderful children and I am glad to be able to share them with the world so that they can tell their story. If anything can make people understand how difficult cancer is, it is hearing it from the perspective of a child.

I am happy to say I did not cry in the interview. At least not on the outside.

Monday, August 10, 2009

Medium



Medium: def: A middle state or condition, about halfway in between extremes.

I am not a large framed person. I have relatively small bones but am pretty average in size. I am 5'6 and though am carrying 15-20 extra pounds of weight that I would like to get rid of, am relatively well proportioned for my size.

I have spent the majority of my adult life shopping for clothes in the Large or Extra Large section of the clothing racks. Not because I am necessarily a large or extra large person, but because my chest was significantly larger than the rest of my body.

Maybe this wouldn't have bothered me if I had always considered myself a large person, but that is not the case. I was always the smallest person in my class when I was in school-you know, the one who always had to be at the end of the line in pictures to make the picture look right? I was the smallest person all the way through high school and even after that into adulthood.

Somehow when I turned into an adult, my chest not only caught up with me, but surpassed the rest of my body. Having breast cancer is not the way that I planned to change my bust size at all. However, that is exactly what happened. I was diagnosed with breast cancer, had a lumpectomy and ended up being non-symmetrical. I chose to have a breast reduction on both sides after I completed all of my treatment.

I recently had to order a t-shirt for the 3 day walk and tried on the sizes to see what t-shirt size I should order. The size I ordered? Medium. Perfect!

Monday, August 3, 2009

Why Worry?

"We either make ourselves happy or miserable. The amount of work is the same"

My sister is doing the 3 day walk with me in September. Though she is looking forward to it, she is very worried. She was concerned that she wouldn't be able to raise 2300.00-she has. Now she is concerned that she won't be able to complete the walk. She told me recently that she is having those pre-wedding type dreams where you arrive completely unprepared.

We had someone who has walked in the event before tell us that it was the best 3 days of her life and the worst 3 days of her life. My sister is concerned not about it being the best 3 days, but about it being the worst.

Physically and mentally I think it will be a difficult 3 days. I think it will be difficult to see the amount of people affected by breast cancer and I think it will be difficult to walk 20 miles for 3 days in a row. Will it be the worst 3 days of my life? Not a chance.

The worst 3 days of my life have been the day my dad died, the day my sister delivered and lost her first baby and the day I was diagnosed with breast cancer. Physically the worst 3 days of my life have been the day I gave birth to my first daughter, the day after I had a titanium plate and 9 screws placed in my wrist and day 4 after my first round of chemo.

The first oncologist that I spoke to after being diagnosed told me that many women find they become stronger people after being diagnosed with cancer. My instinct at the time was to tell him to shove it where the sun doesn't shine, but maybe he was right. It hasn't occurred to me once to be worried about the 3 day. I wasn't worried about the fundraising (I am currently at 7400.00) and although I knew I needed to train to physically be able to walk 20 miles for 3 days in a row, it has never occurred to me that I wouldn't be able to do it. I guess I am a stronger person than I thought I was.

My sister has had some extremely difficult days as well, both physically and emotionally. I have faith in me and I have faith in her as well. It will be a hard 3days but we can do it, I know it without any doubt. It will be 3 of our best days, not our worst.

Wednesday, July 29, 2009

Summertime


We are having a heatwave in Seattle. It never gets above about 80 degrees here but for the past several days we have been in the high 90's, even hitting 100. We just aren't used to it here so we all complain that it is too hot and that it doesn't cool down at night. Our animals are listless and no one will even consider cooking. The plants are all drooping and the grass is turning brown.

All that being said, this summer has been fantastic. I can't help but comare it to last summer. I did my first chemo on July 9 and continued to do it every three weeks until September. I don't think it was this hot last summer, but I really don't remember because I spent a good majority of the summer sleeping on the couch or in bed. I also spent most of the summer wishing I could do more with my family. It's not that they weren't around-they were and they were very supportive, but all plans had to go through the chemo filter; was it a chemo week? Was I going to feel good enough to do anything? I was also working full time with intermittent leaves of absence for each round of chemo. Last summer, I just wanted my life back.

Yesterday was the perfect definition of having my life back. It was so hot in the house that by 10:00am we were all sweating. The girls and I decided to pack a cooler and head to the lake. Our neighborhood sits on this lake and we have a private park and beach access so there is no need to fight a crowd. We packed a lunch, took a big air mattress and some sunscreen and headed out to float. We played on the beach for awhile with my sister and her 3 daughters, then lathered ourselves in sunscreen and jumped on the air mattress. We floated the lake for several hours, jumping in occasionally to cool off.

When Larry came home, he joined us at the lake. We had a chance to catch up with some neighbors who were also there and to cool off. We came home and barbecued some burgers and sat outside to eat. It was too hot to go back in the house so we stayed outside playing cards with the girls until we could no longer see the cards. I love my life-heatwave or no heatwave, and I am extremely grateful to have it back.

Sunday, July 26, 2009

Raising the Roof and Raising Funds


Last night our 3 day team had a fundraising event. There were survivor type games, a silent auction, a casino, horseshoe tournament and raffles. This was no quiet, meek crowd-this party was hopping all day and night! The party was at our team captain's house and while there was plenty of drinking, horseplay and general rowdiness, none of us forgot for one second why we were there. We were there to raise money to fight breast cancer.

Fundraising comes in all shapes and colors. Some people send personalized letters, some do bake sales and car washes and some throw a party. We threw a party and it was a heck of a good one. Our little party out in the middle of nowhere raised over$15,000.00! As a team we are now at a little over $112,000.00 with 52 members going strong.

With dedication and support like what I witnessed last night, breast cancer doesn't stand a chance. It is going to have a brief, miserable life.

Thank you to everyone who donated or contributed in any way to last night's fundraiser. I can't wait until the day when we throw a party not to raise money but to celebrate the demise of breast cancer.

Thursday, July 16, 2009

In Good Hands



Albert B. Einstein Jr



The original Einstein

Today I went in for a 3 month checkup with my oncologist. Though I have always been happy with the care that I have received at Swedish Hospital, I really did not want to be there today. I just didn't. I am enjoying being part of the land of the healthy. I didn't want to be sitting there with people who are bald and sick and waiting to go through chemo. That isn't where my head is at these days. I didn't want to have my blood drawn or get on a scale, I didn't want to be poked and prodded and I wasn't excited about having my second Zometa infusion. I wanted to be at home enjoying the warm weather.

My oncologist is not only a fabulous doctor (one of the top 3 in Seattle) she is also very similar to me. She is my age, she has two children and she is a breast cancer survivor. I was lamenting to her about not wanting to come in today. She laughed and said that she has learned to not take it personally that people really don't look forward to seeing her. She also said that in her own cancer journey, she really doesn't want to go see her oncologist either.

The appointment went well and she doesn't want to see me for another 3 months. The zometa infusion was also uneventful. I can expect to not feel well tomorrow, but I am keeping my fingers crossed that this is not the case.

I had to have my doctor sign a medical waiver for me to be able to walk in this year's 3 day walk. Per the 3 day guidelines it has to be on official letterhead. My doctor gave me her blessing to walk and wrote it out on her letterhead, which I did not look through until after my Zometa infusion. The official letterhead has a list of all of the doctors that are in the cancer institute. At the very top? Executive Director-Albert B. Einstein Jr. It made me laugh. Albert Einstein and I share a birthday so I have always had a connection to him. I guess if Albert Einstein can spend his time at Swedish Hospital, I can do it too. I am in good hands.

Thursday, July 9, 2009

Isn't it strange how as you get older, your memory sometimes isn't as clear as it used to be? If you asked me what I had for lunch yesterday, I probably couldn't tell you. I don't remember it because it wasn't particularly significant. Why is it then that when I woke up this morning the first thing I thought about is that it is July 9th and last year this was the first day of chemo?

I really don't spend all of my time thinking about cancer anymore. I used to, but now I think about other things and getting on with my life. But today I remembered the feelings that were there on July 9th of last year. Dread, fear, anxiety, denial. I kept thinking that someone would tell me during that day that it was all a mistake and I really didn't have cancer and I really didn't need to do chemo.

I kissed my children goodbye without tears but when the babysitter walked me out to the door I started to cry. I'm not sure why-she is a 17 year old girl who definitely had no concept of what I was going to endure that day. She is a family friend though and maybe the tears were because I wanted to be the one that stayed there with my girls. I didn't want to have to have a babysitter to go do something that I was dreading.

Today Larry and I are leaving to go away for the weekend with 5 other couples. We have been doing this trip for 14 years with the same group of people. It is a weekend where we laugh our heads off for 4 days and I am very much looking forward to it. Some of the best memories of my life are from these trips. Maybe I will have a toast tonight to surviving through chemo. Maybe I will toast to having such great friends. Maybe I will toast to having memories-both good and bad.

Friday, July 3, 2009

Clean as a Whistle


It has been nearly a month since my surgery. I am feeling pretty good although still have a good amount of swelling and a part of a scar that is not cooperating as much as my doctor would like. Overall though, I would call my surgery a success. I am a much more comfortable size and am back to being symmetrical.

Since I have been diagnosed with cancer before, anytime I have any type of surgery on my breasts, the tissue must go to pathology to be tested. I knew that this was the case and it has definitely caused me just a tiny bit of concern. While I have been physically healing, I continued to have this little nagging thought in the back of my mind that the pathology reports might come back with news that I didn't want to hear.

I hadn't heard anything from my oncologist who received the report so I just kept telling myself that no news must be good news, but I finally called and asked to have an official report. Her nurse called me yesterday to tell me that my pathology report came back clean as a whistle. No sign of cancer in any of the breast tissue that was removed.

Both Larry and I nearly cried when we heard. I didn't realize how much it was weighing on both of us that there was still an unknown. I have an MRI and a mammogram later this month as part of my preventative maintenance plan. For the first and probably only time, I will go into them calmly and without worry.