This week is tune-up and preventative maintenance week. Yesterday I had a follow-up with my surgeon and a bone density scan. Tomorrow I have a follow-up with my oncologist, a zometa infusion and an MRI.
I currently think of myself as a healthy person so it is kind of strange to be spending so much time at doctors offices and hospitals but it also helps me to maintain the idea that I am a healthy person.
The bone density scan is something I will have once a year (this is my second one). Because I was forced into menopause through chemo and because I am taking Tamoxifen, there is some concern about bone loss so I will have this test each year to make sure that my bones are holding up.
I have an appointment with my oncologist every 3 months. For the most part, these are now just appointments to make sure I'm not having any adverse side effects of the drugs, she will also do a breast exam and check my lymph nodes. I have blood work done each time that tests various things such as my iron, my vitamin D level, my estrogen level and my tumor markers.
I will have my 3rd infusion of Zometa. Zometa is a bisphosphonate which is essentially a bone density drug. For me, with my diagnosis, this drug is a preventative. Zometa has been shown to reduce the risk of a recurrence to the bones by roughly 30 percent. I will have it every 6 months for 3 years. It takes about 45 minutes for an infusion and so far I have had minimal side effects. I generally have a day of feeling just a bit off, maybe a bit flu-like and tired. It isn't debilitating though, and worth it in the end.
The MRI is just one more tool in my toolkit to look for lumps or differences in my breast tissue. I have a mammogram every 6 months and alternate those with the MRI so I am having some type of imaging test done about every quarter.
It is hard sometimes to force myself to spend the day at doctor's offices. It is especially hard to have the Zometa infusion as that is in the same place that I had chemo. It reminds me of how difficult it is. Cancer is hard. There is just no denying that it is a terrible, difficult disease. However, I am grateful for good health care and thankful that so many people are on my team, helping me to make sure that I remain healthy. So, I will go in on Friday and I will be grateful that I am going there to remain healthy and not because I am sick.
Showing posts with label health. Show all posts
Showing posts with label health. Show all posts
Thursday, January 14, 2010
Monday, January 4, 2010
Measuring a Year
If 2008 was my year of living with cancer, 2009 was my year of living without it. I wish I could say that after finishing treatment that I went back to my normal life, but that isn't really true. Cancer doesn't really go away. It is something I think about every single day. In 2009, I got to figure out what living without cancer is like.
In 2009 my friendships were different than they were in 2008. Not better or worse, just different. I was reminded that everyone has challenges and joys in their life and I get to participate in those. In 2008 I knew this, but couldn't give my attention to it.
My world became broader. This year I did 2 radio interviews, a television interview, wrote a newspaper article and was interviewed for an article. I participated in the Susan G. Komen 3 day walk. I had the pleasure of meeting an entire group of breast cancer survivors from around the counry. I got to be part of the world in a bigger way than I had before.
I am now an expert in something I never wanted to be an expert in; cancer. I wish I could say that I didn't know anyone else who had been diagnosed, but that is not the case. Though I am incredibly sorry that more women have been diagnosed, I am glad that I can provide some help and support based on my own experience.
I have been unemployed since March. While this has caused a good amount of stress financially and my confidence sometimes takes a hit, I am grateful every day for the opportunity to spend time with my family. I don't think I would have had the same level of appreciation for it had the prior year not been consumed by cancer.
I have aches and pains. Every ache and pain causes me concern. It is very difficult to convince myself that every pain isn't cancer. But I am remembering what it is like to have aches and pains that are part of being human.
In 2008 I measured my year in treatments and surgeries and how it was affected by cancer. In 2009 I had to find another way to measure. My favorite musical of all time is Rent. My favorite song and the one that brings me to tears every time I see it is Seasons of Love. How do you measure a year? How about love.
Seasons of Love
525,600 minutes, 525,000 moments so dear
525,600 minutes how do you measure
Measure a year
In daylights, in sunsets, in midnights, in cups of coffee
In inches, in miles, in laughter, in strife
In 525,600 minutes - how do you measure a year in the life
How about love
How about love
How about love
Measure in love
Seasons of love
525,600 minutes, 525,000 journeys to plan
525,600 minutes how can you measure the life of a woman or man
In truths that she learned, or in times that he cried
In bridges he burned, or the way that she died
It�s time now to sing out, though the story never ends
Let's celebrate remember a year in the life of friends
Remember the love
Remember the love
Remember the love
Measure in love
Seasons of love
Seasons of love
Tuesday, November 10, 2009
Aging Gracefully?

I had the chance to go on a field trip for my niece today with my sister and the babies. I haven't been on a pre-school field trip for a long time so it was very fun to be around a bunch of excited 4 year olds. As we were walking out, my niece's teacher says to another little girl-"Go ahead and follow Ellie's grandma" meaning me. Ummm.....Grandma?? Ouch.
When you are told that you are going to have to have chemo and lose your hair, there is a certain amount of vanity that you have to let go of and deal with the fact that you are not going to look the same as you did before. But here's the thing...I wasn't thrilled to lose my hair at all, but once I did, I was actually pretty happy with my head and how I looked. I felt like all through chemo, besides looking a bit pale, I was looking OK.
Now that my hair is growing back and I am healthy, I have been under the illusion that I was looking pretty good. I am 44, I have decent skin with not very much wrinkling, dark brown hair-no gray, I am relatively fit. I don't wear mom jeans, I try to stay up on fashion. I mean really....grandma?? Not that there aren't 44 year old grandmas, there are, but hopefully none of them have children that are my sister's age.
My sister is 39 years old which means if this woman truly thought I was her mother, then she thought I was at least 59, 60? My own mother is a very young looking 65 and my grandmother is a very young looking 85. While they are both lovely and young looking, I'm not entirely sure I want to be thought of as the same age. And while my sister is beautiful and wonderful, I can't in all honesty say I would mistake her for someone who is 23 or 24 with a 44 year old mother.
Have I just been so happy to be healthy that I didn't realize that I look much older than I am? Did I really go from looking 43 before diagnosis to looking 59 after?? What a blow to the ego that is. Now what? I guess I need to start taking a hard look at how I appear to other people and what I am doing to stay healthy. Or maybe I just say this woman is not especially observant and clearly spends too much time around 3 and 4 year olds. Maybe I just shoot daggers at her until she realizes that not only am I only 44 years old, I am still young enough to take her out in the parking lot and teach her a lesson!
Monday, May 25, 2009
Lazy Days
When it is sunny in Seattle, there is nothing better. The sun has been shining for the last several days and we have been enjoying the long weekend. We have worked in the yard, barbecued wth friends, done a little shopping (gotta hit the holiday sales) and broken out the summer clothes. It has been a very carefree weekend.
Last year at this time, I had just taken my sister into emergency with kidney stones (she was 9 months pregnant with twins) and we were all worried about her health and the babies' health. I was also anxiously awaiting my lumpectomy. I remember not being able to enjoy the weekends at all leading up to my surgery because it felt like the only possible thing that could be happening on those days was that the cancer in my breast was growing by leaps and bounds. I could literally hear a tick, tick, tick in my head. A time bomb-that's what I was carrying around.
Last memorial day weekend was a soccer tournament for my daughter. I remember only one thing about that weekend and that was that my best friend Shannon drove from Portland and met me at the soccer fields so her daughter could spend a couple of days with us. I remember not knowing how to talk to her (a problem we have NEVER had) because there was so much to say and we were in a very public place. I knew that whatever words I said to her or she said to me were going to cause me to break down and cry which I didn't want to do on a day that should belong to my kids. Sadly, I do not remember one single thing about the soccer games-not who won, not who lost, not even if it was a good tournament----nothing.
One year later I am preparing to walk in the Seattle 3 day event and training every day. I am looking forward to my twin nieces first birthday (they were born on May 27-both small and premature, but perfectly healthy), my sister is fully recovered and I am preparing for another surgery. This one will be for reconstruction, mostly just making myself symetrical again and doing a little polishing up. While I was looking forward to last year's surgery, it was for a completely different reason. I wanted that cancer out of my body as quickly as possible. This time I am looking forward to the surgery for purely cosmetic reasons.
I am not taking for granted for one minute that I have the luxury of enjoying these lazy May days. I thank God I am able to do so and hope to enjoy many, many, many more.
Last year at this time, I had just taken my sister into emergency with kidney stones (she was 9 months pregnant with twins) and we were all worried about her health and the babies' health. I was also anxiously awaiting my lumpectomy. I remember not being able to enjoy the weekends at all leading up to my surgery because it felt like the only possible thing that could be happening on those days was that the cancer in my breast was growing by leaps and bounds. I could literally hear a tick, tick, tick in my head. A time bomb-that's what I was carrying around.
Last memorial day weekend was a soccer tournament for my daughter. I remember only one thing about that weekend and that was that my best friend Shannon drove from Portland and met me at the soccer fields so her daughter could spend a couple of days with us. I remember not knowing how to talk to her (a problem we have NEVER had) because there was so much to say and we were in a very public place. I knew that whatever words I said to her or she said to me were going to cause me to break down and cry which I didn't want to do on a day that should belong to my kids. Sadly, I do not remember one single thing about the soccer games-not who won, not who lost, not even if it was a good tournament----nothing.
One year later I am preparing to walk in the Seattle 3 day event and training every day. I am looking forward to my twin nieces first birthday (they were born on May 27-both small and premature, but perfectly healthy), my sister is fully recovered and I am preparing for another surgery. This one will be for reconstruction, mostly just making myself symetrical again and doing a little polishing up. While I was looking forward to last year's surgery, it was for a completely different reason. I wanted that cancer out of my body as quickly as possible. This time I am looking forward to the surgery for purely cosmetic reasons.
I am not taking for granted for one minute that I have the luxury of enjoying these lazy May days. I thank God I am able to do so and hope to enjoy many, many, many more.
Sunday, April 12, 2009
Happy Easter

Today our Easter was rather quiet. My parents are out of town (we missed you!) and we had brunch with my sister and her kids. We made a fabulous stuffed french toast and all of the girls were near explosion level with strawberries and whipped cream.
I am thankful for simple things today. The laughter of my kids as they searched for eggs, the whipped cream smiles of my daughters and my nieces, the smell of sausage and syrup, the ability to smile and be happy knowing that my whole family is healthy and happy, my husband cooking on the griddle (he is the king of breakfasts in our house) and just a little champagne to celebrate.
Happy Easter!
Sunday, April 5, 2009
Happy Birthday
Today is my dad's birthday. He would have been 68 years old. Unfortunately not only did he not get to see the 60's, he never even got to see the 50's. He died of pancreatic cancer at 48. His death was the only cancer death I had ever known until recently. It is his experience that shaped some of my own actions with my cancer diagnosis.
My dad was "follicly challenged" and didn't have a lot of hair to begin with, but I remember watching him pull it out by the handfuls after beginning chemo. It was for this reason that I decided to shave my head instead of waiting for my hair to fall out. I didn't think I could emotionally handle the devastation of seeing my hair come out in my hands or on my pillow. Even though shaving my head was extremely difficult, it was the right decision for me. It gave me a certain amount of control of a situation that I would have rather not been in.
Pancreatic cancer can sometimes be related to ovarian and/or breast cancer. It can also be somewhat related to lifestyle and my dad was not a very healthy specimen. My dad's brother passed away of brain cancer last year and his son (my cousin) currently has throat cancer. This was enough cancer risk in my family for me to decide to be tested for the BRCA1 and BRCA2 gene mutations which I thankfully do not have.
My dad died on my mother's birthday when I was 24 years old. I had seen him the day before his death and knew without a shadow of a doubt that he was not going to make it. It was a devastating blow to me and my first experience with mortality. It was his death that made me realize that people really, truly die and don't live forever. That same year, his mother (my grandmother) died as well cementing that realization for me.
It is unfortunate that many of the things that I remember about my dad have to do with his death and the impact that it had on me. There are plenty of other things I remember as well; making him the biggest sandwich I could fathom, his ability to paint a holiday scene on our windows, the way he smelled, the tattoo on his forearm, his all-consuming love of his children, his belly laugh, his absolute refusal to drink coffee, the proprietary way he felt about Mt. Rainier. I wish, wish, wish he would have been alive to see his grandchildren. I think he would have been so proud that he would have nearly burst.
There are so many moments that he missed so here is one for him. The first day of school for both girls when we moved to our new house. Happy birthday dad....from two of your 5 beautiful grandaughters. We love you.
Tuesday, March 31, 2009
Name that Pain
My back hurts. Also my right foot has a pain in it. I have felt shooting pains in both breasts. I am certain that I have had random pains in my life before and not worried that it was cancer. I just don't remember what that felt like. It is a constant battle to tell myself that these are normal aches and pains that people get from overdoing it, or straining a muscle or being tired. I have a very good imagination and unfortunately every time I have an ache or a pain of any kind, my first thought is that it is cancer. When do I get to go back to not worrying about all of these things? When do I get to accept the fact that it might just be something as simple as a pulled muscle?
I keep remembering that great scene from Kindergarten Cop with Arnold Schwartzenegger when he has a headache and the kid tells him "it's probably a tumor". Arnold's response---"it's not a tumor!"
I will try to put Arnold's voice in my head every day and every time I feel an ache or a pain. "It's not a tumor!" If Arnold says it, it must be true.
I keep remembering that great scene from Kindergarten Cop with Arnold Schwartzenegger when he has a headache and the kid tells him "it's probably a tumor". Arnold's response---"it's not a tumor!"
I will try to put Arnold's voice in my head every day and every time I feel an ache or a pain. "It's not a tumor!" If Arnold says it, it must be true.
Monday, February 16, 2009
Year of the Snake

Two years ago today, after taking a nice long walk with my children and the dog, I came back in through the garage, slipped on a plastic bag and broke my wrist. I had never broken a bone before and it wasn't a pleasant experience at all. I broke it in such a way that it wasn't going to heal with just a cast and ended up having to have surgery. I have a titanium plate and 9 screws in my wrist. 2007 ended up being the year of "the wrist". I broke it in February, had surgery in April and was in physical therapy from May when I got my cast off until the end of August. Everything was difficult that year. Working was difficult as I could only type with one hand for several months, getting dressed was difficult and I couldn't tie or button my own pants for several months. I thought 2008 couldn't possibly be worse than 2007.
In 2008 I was diagnosed with breast cancer and it became the year of "the breast". I was diagnosed and had a lumpectomy in May, had chemo from July to September, radiation from September through November.
2009 is the year of the Ox according to the Chinese. I don't know what this year will bring for me. I will work my last day at WaMu on March 31st, will take a few months off and then will be pounding the pavement looking for work, so maybe it will be the year of "the job" for me. I am also working on writing a book this year so maybe it will be the year of "the book". In September I will be walking in my first Susan G. Komen 3 day walk and am already training and fundraising. Maybe it will be the year of "the walk"?
On the other hand, I was born in the year of the Snake and for the most part, it rings true for me. I will wait to see what this year brings.
People born in the Year of the Snake are deep. They say little and possess great wisdom. They never have to worry about money; they are financially fortunate. Snake people are often quite vain, selfish, and a bit stingy. Yet they have tremendous sympathy for others and try to help those less fortunate. Snake people tend to overdo, since they have doubts about other people's judgment and prefer to rely on themselves. They are determined in whatever they do and hate to fail. Although calm on the surface, they are intense and passionate. Snake people are usually good-looking and sometimes have marital problems because they are fickle. They are most compatible with the Ox and Rooster
Friday, February 6, 2009
Blessings
Because my company is vacating some of its office space in Seattle, I have spent much time this week gathering and donating office supplies with my coworkers. Yesterday we delivered to a local school in Seattle that is the lowest income school in the district. We delivered over 100 boxes of paper, pencils, file folders etc. There was a very nice man who I assume is the custodian who helped us carry all of the boxes into the school. We had said in passing that it was such a waste to have all of these extra supplies just sitting around. His response was "It's a blessing to us". He's right. As employees, we take for granted that every day we can find a pen or a pad of paper. But at his school, they can't assume that those basic needs will be there every day and they are extremely grateful that we could help change that.
This week I also had the chance to bring a meal to a friend who was diagnosed with breast cancer and thyroid cancer last fall. She is actually a friend of a friend and we have only met a couple of times. She thanked me for bringing the food and we talked for quite awhile. She told me how grateful her family was for all of the meals that have been prepared for them. We had meals brought to us from July to November through chemo and radiation last year by many caring friends and family. I told her that I was grateful to be able to pay it forward. I realized that something as simple as preparing a meal for someone is a real blessing. When you are healthy you take for granted that you can prepare your own meals or even prepare one for someone else. But when you are battling cancer or any other major illness, you just can't take it for granted that you will be able to provide this basic need for your family let alone provide it for someone else.
I realized in both cases, delivering school supplies and a meal, that as humbling as it was to have to accept help all through my treatment, it is a blessing to be able to give that help right back.
This week I also had the chance to bring a meal to a friend who was diagnosed with breast cancer and thyroid cancer last fall. She is actually a friend of a friend and we have only met a couple of times. She thanked me for bringing the food and we talked for quite awhile. She told me how grateful her family was for all of the meals that have been prepared for them. We had meals brought to us from July to November through chemo and radiation last year by many caring friends and family. I told her that I was grateful to be able to pay it forward. I realized that something as simple as preparing a meal for someone is a real blessing. When you are healthy you take for granted that you can prepare your own meals or even prepare one for someone else. But when you are battling cancer or any other major illness, you just can't take it for granted that you will be able to provide this basic need for your family let alone provide it for someone else.
I realized in both cases, delivering school supplies and a meal, that as humbling as it was to have to accept help all through my treatment, it is a blessing to be able to give that help right back.
Tuesday, January 27, 2009
No Smoking

Yesterday as I was walking to get my lunch, I saw a group of teenagers smoking. Here in Seattle, smoking is probably less prevalent than other places and maybe having grown up here I am less tolerant about it. It makes me sad and angry to see it.
When I was diagnosed with breast cancer, I had to take a good look at what my risk factors were and found that I really didn't have many. I did not start menstruating early, I don't have any family history, I have never smoked, I have since found out that I do not carry the BRCA1 or BRCA2 gene, I am not obese and though I had my children a little later (32 and 33), it doesn't increase my risk significantly. So with very few risk factors (can't change the fact that I am female for instance), I still was one of the unfortunate ones to be diagnosed with cancer.
Having cancer is not fun in any way, shape or form. It is not fun to go through chemo or radiation, surgery or hair loss, not to mention the emotional turmoil and the possibility of death. It is miserable and I want to shout it at the people that I see smoking. "WHAT ARE YOU THINKING??!!!!"
We all have a certain amount of risk factors, some we can change and some we can't. But smoking is a KNOWN cause of cancer. Not suspected; known. You smoke, you get cancer.
A few things I found on smoking and risk:
"Among male cigarette smokers, the risk of lung cancer is more than 2,000 percent higher than among male nonsmokers; for women, the risks were approximately 1,200 percent greater. Lung cancer is the single largest cause of cancer mortality among both men and women and accounts for more than one in every four cancer deaths nationally in the U.S."
"In all, it is estimated that cigarette smoking causes approximately 23 percent of all cancer deaths in women, and is responsible for 42 percent of all male cancer deaths (Shopland et al., 1991)"
Specific to breast cancer risk, teens who smoke are more likely to develop breast cancer before menopause and are more likely to be diagnosed with aggressive, hormone receptor-negative type breast cancer.
Every time I see a teenager smoking and am with my children, I tell them again that they will NEVER smoke. I will not allow it. I will not tell my girls that they can try it, that it is ok to do in moderation or only once. I will not tell them to use their own judgment. I will tell them that under no circumstances will they smoke. I hope and pray that having watched me go through cancer they will never even be tempted.
Sunday, January 4, 2009
Long Term Contract

Now that we are officially into the new year of 2009, people are talking about New Year's resolutions. I actually don't like New Year's resolutions. They feel like a short term contract to me. If you are going to make a plan, make it a long term contract or what is the point?
In looking ahead to this year and many more, here is where my long term contract begins with myself:
1) I will take care of myself. I will make exercise a part of my life and will be mindful of what I put into my body. I will remember that I am worth the effort it takes to be a healthy person.
2) I will make time for fun. Sometimes I forget that fun and laughter are important things. It is easy for me to get involved in my day to day life, complete with stress and worries, but those aren't the times I remember. It is the fun times that I remember and treasure.
3) I will live a broader life. I have a small family, a small group of friends, I live in a small town and I have been content in this place for a long time. My cancer diagnosis has helped me to realize that there is a much bigger world out there that I can reach out and touch. This doesn't mean I'm not happy in my life, I am...I just want to broaden it and continue to learn.
4) I will write. Writing has become something that I very much enjoy doing and I will find a way to continue doing it. I have two ideas for books that I would like to start tackling this year. What I know about writing or publishing books is exactly zero, but if I want to do it, I must put it out in the universe so I can learn.
5) I will work at a job that I love. What a chaotic year it has been for employment for us. I will work at WaMu until March and then I will have the opportunity to find a job that I love. For the most part, I enjoy working. I like being part of something bigger than me and I like bringing value. I have skills and I like being good at something. I also like having the flexibility to have my job be a part of my life-not my whole life.
6) I will raise money towards cancer. Cancer is a miserable disease and it breaks my heart every time I hear of someone who has been diagnosed or has lost their battle. It just has to go away and that is all there is to it. I have to do my part to make it go away.
7) I will treasure my friends and family. They are the reason why I got in the ring to duke it out with cancer. They are what gave me the strength to keep doing it.
8) I will continue to raise amazing children. I almost think they could do this on their own. This is the nature vs nurture argument. Is it the parents that help to make the children great, or do they just come out that way? I think Larry and I are good parents, but we lucked out in the kid department! Our kids are amazing and I am in awe of them every day.
9) I will be thankful.
10) To be continued....
Wednesday, December 31, 2008
Reflections on 2008

New Year's Eve 2008. We are going to Portland to spend time with friends and to celebrate the New Year, and what a year it has been. There is definitely part of me that says "Good Riddance" to 2008 but really, I feel like before I look forward to 2009, I have to pay my respects to a truly life changing year. It brought many things-some good and some not so good.
Loss: We lost Larry's son to a blood clot and our friend Marty to cancer. We lost our carefree life. Turmoil: Larry and I were both laid off from our jobs at different times. My layoff was a notification and I will be employed at WaMu until the end of March. In the face of everything else that happened this year, not being sure of our financial security threw our lives into more turmoil. Devastation: Not only was I given the devastating news that I had been diagnosed with cancer but so were many friends: Michael, Marty, Ankie and Shana. Pain: Larry and I both had surgeries this year but ours was not isolated to physical pain. The mental pain of being diagnosed with a potentially deadly disease is significant. It is immense-this possibility of dying and leaving my children and family. It is immense for everyone who loves me as well. No matter how hard we all try to stay positive, the fact remains that people die from cancer and I do not want to be one of them. Fear: The fear of the unknown when being diagnosed is almost tangible. The fear that there was more cancer than we were aware of, fear that it would win, fear that the treatments would be unbearable. I could end my reflections of 2008 there and say that it was an extremely miserable year, but it wouldn't be a very true reflection. It was miserable at times....really miserable, but that wasn't all of it.
Joy: In direct opposition to the devastation came the joy of finding out that my cancer was contained in one breast. We also found joy in everyday things; time with friends, good food, special events, sunshine and lots of laughter. Gratitude: I'm an independent person. I don't often need help from other people but I can't say how grateful I am for the amazing support of family and friends. I will never understand how people can battle cancer on their own. There is simply no possible way I could have done it without the great people in my life. Strength: I have many people tell me that I am brave and courageous but I don't see it that way. It's not like I had a choice in the matter; I couldn't just roll over and die, I had to get up and fight. What I do see is that I have more strength than I thought. Not only do I have strength, but so do my husband and my children. They are really the brave and courageous ones. They did have a choice and they chose to get in the ring with me and thank God they did! Pride: I have been proud of my children since the day they were born, but I am so proud of my family and how they have handled this. They have handled it with grace, compassion, determination, humor and love. Isn't this what we want from our children and spouses? To know that they can handle the hard things as well as they can handle the easy things? Happiness: Does it seem odd to say that in the year that I have been diagnosed with breast cancer that I would find myself to be happy? I am. I am very happy with my life and have found a certain confidence in myself that I didn't have before. I have found a joy in expressing myself through writing-something I didn't know that I needed. Clarity: My priorities are defined in a much different way since my diagnosis. Friendships are important, family is important, my job is important and my health is important. My health! I have ignored it for many years and been lucky. Now I get to pay attention to it and be grateful to do so.
2008 was a terrible year in many ways and I wouldn't have wished it upon myself or my family. But now that it is done, I recognize it for what it was...life changing. It brought as many good things as it did bad things and I am grateful for the opportunity to recognize and appreciate both. I will not go so far as to say that I am grateful to have cancer. I'm not-I still hate it. But I am grateful for those positive things that it has brought into my life and those things that I have had the opportunity to view in a different light. I am grateful to have made it through so that I can lay 2008 to rest with the dignity that it deserves.
Saturday, November 29, 2008
Defense

I had the pleasure of having lunch today with several friends from my Nordstrom days. Despite the fact that we have not worked together in 8 or 10 years we still try to keep in touch and get together at least once per year. It was great to see all of them and get updates on what is important in their lives these days. They asked me what has changed in my life since my diagnosis and I told them there are several things. My perspective for one. My utter amazement at my friends and family for another, and the way I view my "job" of keeping cancer at bay.
I have done most of the heavy lifting that I can medically now and feel like it is my job to construct the best defense possible against a recurrence since I am now at a greater risk than someone who has not had cancer.
To be sure, there are people who are overweight, smoke their lives away, drink like fish and spend all of their waking hours at McDonalds who never get cancer in their lifetime. There are also people who eat organically, carry very little extra weight, exercise like fiends who are diagnosed with cancer. Look at Lance Armstrong for instance-a healthier specimen would be difficult to find. There are people who carry the breast cancer gene who are never diagnosed and people like me who don't have a history but are diagnosed anyway.
There are no sure fire ways of preventing cancer. But there are ways to decrease your risk. I have spent a lot of time researching, talking to doctors, nutritionists, naturopaths and anyone else I can think of to help me decide on the defense that is right for me. So for Inga, Fabi, Helen and Michelle', here is my plan of attack. It is what is right for me and it is constantly evolving. It is not necessarily what is right for anyone else. Everyone has to do what works for them....
Supplements:
Multi-vitamin
Calcium supplement with Vitamin D
Fish Oil
Vitamin C
Diet:
No processed sugar or sugar substitutes
No corn syrup of any kind
Limited trans-fats
1 cup of green tea 5-6 times per week
Limited red meat
Limited alcohol
Lots of fruits and vegetables in a rainbow of colors
Limited flax and soy (this is because I am estrogen positive-in general, these things are very healthy)
Lots of whole grains and fiber
Water, water and more water
Habits:
Exercise 4 1/2-5 hours each week
Try to limit stress
READ LABELS!-I try to choose things with as few ingredients as possible. I also try to not choose items that have ingredients that I wouldn't eat on their own. Would you put Yellow #9 on a plate and eat it by itself??
Buy organic produce whenever possible
Get 10-15 minutes of sunshine a couple times per week
Reduce my body fat (this is a work in progress!)
Listen to my body and talk to my doctor with any questions
Get regular mammograms
Be mindful of my environment-plastics, pesticides etc.
Will this guarantee that my cancer won't return? Nope. If there was a guarantee, I would be the first in line to get one. Lifestyle changes (diet and exercise) can reduce my risk of a recurrence by up to 50% which is more than I got from chemo and radiation. Is it worth it for me to skip the candy bar? You bet.
Wednesday, October 8, 2008
Sunshine Vitamin

In Washington state, we have one of the highest incidences of breast cancer in the country. We also happen to have one of the highest incidence of Multiple Sclerosis in the country. Some studies speculate that both of these could be attributed to a lack of vitamin D. Vitamin D is of course the Sunshine Vitamin. It is something that our bodies manufacture from exposure to sunlight.
According to one Canadian study, "Women who have a vitamin D deficiency when they are diagnosed with breast cancer were 94% more likely to have their cancer metastasize and 73% more likely to die within 10 years". "Ten years after their diagnosis, 83% of those who had adequate vitamin D levels were still alive, compared to 79% of those with insufficient levels and 69% of those classified as deficient. None of the patients were given vitamin D supplements."
I recently met with a naturopath at Swedish Medical Center to find out what I should be eating and doing to help decrease my chances of a recurrence of breast cancer. One of the things she told me is that I should have my Vitamin D levels checked to see if I am deficient in Vitamin D.
Yesterday I talked to the nurse at my oncologist's office to ask her to request this test for me for the next time I came in. To my surprise, she told me that I was tested for this on the day of my first chemo (July 9). She looked up my results and found that my Vitamin D levels are well within normal range. Even bordering on optimal! She asked me how much Vitamin D I had been taking and I was happy to tell her that though I take a multi-vitamin and a calcium supplement, I do not take a separate Vitamin D supplement. She told me I was only the second person that she could remember who had normal ranges of Vitamin D without taking it as a supplement.
I am thrilled to hear this as having normal levels at diagnosis seems to have a positive impact on avoiding recurrences in the future. Since I have lived in gray Seattle all my life, I checked to see how much sunshine is needed to manufacture enough Vitamin D and it is pretty minimal; about 15 minutes a day a couple of times per week. I know what you are going to say-what about skin cancer? I'm not minimizing the risk of skin cancer, but I think 15 minutes a couple of times a week is worth the risk if it can help prevent other types of cancer. At least for me it is so I will be making sure I get my sunshine a couple of times a week. For all of the things you can do to help prevent breast cancer, this one is pretty darn easy. Besides, when it is sunny in Seattle-it is glorious!
Tuesday, September 16, 2008
10 Things I Don't Hate About Cancer
There are many, many, many things to hate about cancer and believe me, I do hate cancer but for every cloud there must be a silver lining and I have found a few.
#10-No need for an eyebrow wax
I am not sure why this is, but the area where I generally have my brows waxed is as clean as a whistle! My eyebrows currently have the exact shape and arch that they have after I have had them waxed at zero cost.
#9-No underarm nicks from shaving
This hair was probably the first to go and I don't miss it at all! There is something nice about a smooth underarm-EVERY DAY!
#8-Smooth legs all summer long
The hair on my legs also went quickly and I have had to shave my legs exactly one time this summer. I might not have appreciated this as much if I had to have chemo in the winter, but this was definitely a bonus.
#7-Short Showers
With no hair to wash and nothing to shave, there is only so much one can do in the shower-alone!
#6-Appreciation for the sense of taste
There are very few foods that I don't like and I am willing to try most anything. Having my taste buds disappear with each round of chemo essentially making everything taste like sawdust or mud makes me appreciate the fact that prior to chemo I had pretty accommodating taste buds. I can't wait to welcome them back.
#5-Sleeping with my children
When my girls were young I used to be able to nap with them occasionally and thought it was one of the greatest things in the world. Now that they are 10 and 11 I don't ever have this opportunity. Since I have spent so much time during chemo sleeping or napping, I have had the chance to sleep with both of my girls at some point. I even got to catch a nap with my niece the other day. There are few things more personally rewarding than snuggling up with the warm, soft body of a child.
#4-Letting my husband take care of me
Soon after Larry and I met, I remember him telling me that I wasn't an easy person to take care of because I am too independent. I'm not used to allowing people to take care of me, but happened to marry someone who thrives on taking care of people. Being hit by the chemo truck gave us both the opportunity to let him take care of me.
#3-Understanding I have choices
Getting a Cancer diagnosis is overwhelming and debilitating. It seems that everything is happening TO you. I realized that I have choices. I can choose my attitude, my outlook, my treatments. I can also choose to have my body work against me or work for me. I intend to make it work for me.
#2-Friends near and far
I knew I had friends, I really did. I just didn't know how caring and supportive they would be or to what lengths they would go to support me. I gained friends as well. I even received support from people that I would have guessed didn't even know that I existed.
#1-Having my health
Most people probably wouldn't say they were healthy when diagnosed with cancer, but besides that little fact, I am actually pretty healthy! Being healthy has helped me to bounce back from each chemo and withstand potential infections. I don't have any allergies or other illnesses. I can't imagine having to tackle cancer with high blood pressure or kidney disease or severe allergies or a compromised immune system. Now I know I have done everything in my power to insure my health and I am going to do everything humanly possible to hang onto it. I am worth it.
#10-No need for an eyebrow wax
I am not sure why this is, but the area where I generally have my brows waxed is as clean as a whistle! My eyebrows currently have the exact shape and arch that they have after I have had them waxed at zero cost.
#9-No underarm nicks from shaving
This hair was probably the first to go and I don't miss it at all! There is something nice about a smooth underarm-EVERY DAY!
#8-Smooth legs all summer long
The hair on my legs also went quickly and I have had to shave my legs exactly one time this summer. I might not have appreciated this as much if I had to have chemo in the winter, but this was definitely a bonus.
#7-Short Showers
With no hair to wash and nothing to shave, there is only so much one can do in the shower-alone!
#6-Appreciation for the sense of taste
There are very few foods that I don't like and I am willing to try most anything. Having my taste buds disappear with each round of chemo essentially making everything taste like sawdust or mud makes me appreciate the fact that prior to chemo I had pretty accommodating taste buds. I can't wait to welcome them back.
#5-Sleeping with my children
When my girls were young I used to be able to nap with them occasionally and thought it was one of the greatest things in the world. Now that they are 10 and 11 I don't ever have this opportunity. Since I have spent so much time during chemo sleeping or napping, I have had the chance to sleep with both of my girls at some point. I even got to catch a nap with my niece the other day. There are few things more personally rewarding than snuggling up with the warm, soft body of a child.
#4-Letting my husband take care of me
Soon after Larry and I met, I remember him telling me that I wasn't an easy person to take care of because I am too independent. I'm not used to allowing people to take care of me, but happened to marry someone who thrives on taking care of people. Being hit by the chemo truck gave us both the opportunity to let him take care of me.
#3-Understanding I have choices
Getting a Cancer diagnosis is overwhelming and debilitating. It seems that everything is happening TO you. I realized that I have choices. I can choose my attitude, my outlook, my treatments. I can also choose to have my body work against me or work for me. I intend to make it work for me.
#2-Friends near and far
I knew I had friends, I really did. I just didn't know how caring and supportive they would be or to what lengths they would go to support me. I gained friends as well. I even received support from people that I would have guessed didn't even know that I existed.
#1-Having my health
Most people probably wouldn't say they were healthy when diagnosed with cancer, but besides that little fact, I am actually pretty healthy! Being healthy has helped me to bounce back from each chemo and withstand potential infections. I don't have any allergies or other illnesses. I can't imagine having to tackle cancer with high blood pressure or kidney disease or severe allergies or a compromised immune system. Now I know I have done everything in my power to insure my health and I am going to do everything humanly possible to hang onto it. I am worth it.
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